Christmas on the boat 2012

Christmas Day – 25th December 2012

Didn’t get dressed on Christmas Day.  It was lovely having my daughter C with us..even if she just spent most of her time on her phone/twitter or kindle reading!!

I spent most of the day cooking and washing up, just a normal Christmas really.   I feel a need to try and enjoy every moment but in a quiet way.   I love being away from everyone and the hustle  and bustle of towns and cars.  I love the quietness of being on a boat, listening to the rain on the metal roof, feeling the boat bob up and down when the wind is strong.  Hearing the birds, the ducks arguing.  The canada geese with their damaged ‘angel wings’, forever stuck in marina, starting to exert their dominance.

I really wasn’t interested in presents, for me it was having my daughter with me.  The run up to Christmas was fairly traumatic with hospital appointments and the fear of the diagnosis to come.  I did not trawl round the shops for little gifts, finding those special little gifts that Mum’s find for their children.  I fear C was a little disappointed, but got what she asked for and even though knitting needles and a bag is not the most exciting it is a lasting present..and of course I will pay for some wool to start her off.

26th December 2012

 – Boxing day

We got dressed….and headed off into the rain to Bakewell in the Derbyshire Peaks.   C’s feet froze and we walked round looking for some thermal socks for her.  There were a lot of people despite the weather.  We sat in a coffee shop and I took pictures of C..I had told her I wanted to start a ‘Memory Book’ before I could no longer remember who anyone was.  I know it was a hard thing to say because it brings home the reality of what is wrong with me for her.   I lie in bed at night and it breaks my heart that time is limited for me being ‘with’ the ones I love.

Am I noticing my memory and other difficulties more because I know it will get worse?  My hearing is not quite right now.  I am unable to process more than one sound at a time.  Don’t bother speaking to me when I am listening to the radio, tv, or music because I can’t get what you are saying.

27th December 2012

We had to get up before the crack of dawn to take C to Birmingham Coach Station because she did not book her return ticket early enough for anywhere closer!!

I miss her when I am not near her.  Living in the city her life is fast paced, friends, a good social life, and life full of interest.  It feels sometimes we are worlds apart, but she has always liked the culture of London Life rather than the quiet country life I prefer.

Author: Gill

I was diagnosed with Early Onset Alzheimer's in Dec 2012 aged 58 after 20+ years of memory and other cognitive difficulties. It was both a relief and a shock getting the diagnosis. But, I am determined to live a happy and productive life with this disease. Enjoy what I can do and push as much as I can physically, mentally and emotionally will always be my mantra :) My plan is to live simply, create a wildlife garden for birds and bees to enjoy when I can no longer garden.

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