Wishes

I had a call from the Research Nurse regarding the Brain for Dementia Study that I expressed an interest in.  It is to do with the progression of the disease, with a yearly 2 hour meeting with testing on my cognitive abilities, and donation of my brain and spinal cord on death.  She will send me the details about the study and will pass my name on to the Research Group at Manchester which is the area that I come under now.

This is good news because I finally feel like I am taking some control over my choices  regardless of whether I will remember that I am in this study; it is me who has asked for this.

Author: Gill

I was diagnosed with Early Onset Alzheimer's aged 58 after 20+ years of memory and other cognitive difficulties. Eight years on and the diagnosis is changing......watch this space because at the moment I have no idea

Happy to hear your thoughts...

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