Dementia: My alzheimer’s progress – no progression!

Progress? No progress – Yay!!!

I had an appointment with my new consultant since moving here.

She confirmed that she had read all of my background notes, which was helpful, so we chatted and then started on the testing.

Shapes, clock, sentences, instructions – no problem.   Remembered three out of five words which was okay.  Had trouble counting backwards from 100 in 7’s, got two wrong and she asked me if I wanted to try again, but it was not a day where my mathematical abilities was going to get any better so I said no!   I have always had problems with numbers, they are just squiggles on a page to me.  I never see patterns or logical progressions, I guess it might be dyscalculia.   I have to concentrate on working out money these days in shops but it is not too bad.

We talked about my confusion with what day it is on a regular basis.  So many people say to me, ‘Oh yes I am like that all the time’, and it is difficult for them to understand what it means when you have dementia.

So, what is the confusion like?   I have a calendar that I write on (most!) all of the time, appointments, visiting Dad, visiting my daughter etc.  I go to Dad’s and a few days later come back, so say I go on a Sunday I return on Wednesday or Thursday.  He wants me to stay so I return on Thursday.  Simple?  Well not quite; my brother and sister in law may come to lunch on Sunday, so I know its Sunday.   Next day I get up and struggle to know whether it is Monday or Tuesday because I can’t remember if we all had dinner together yesterday or the day before.  My anchor has slipped and so I enter a time warp.

We anchor ourselves by what we do on certain days; what we see on television, where we go and who we see, but what if your memory is such that yesterday becomes forgotten?   You lose your anchor immediately.  Most people who say they cannot remember what day it is, usually knows what they did in the previous days so it is really just a confusing blip and they could work it out quite well.   Correct me if you think that’s incorrect.

For me I get very confused/forget about what I did the day/s before so I am immediately lost in a time warp of my own creation.  Does it help to look at a calendar, not really unless I have remembered to cross off the days (which I rarely do).  I could look at my mobile phone and see the date, yes that’s it, then will forget later on that day again!  Sometimes I just cannot hold a memory in my head for love nor money.  So this morning I know it is Sunday, but later I may wonder……

If I had someone living with me they could remind me of what I/we did yesterday and last week and tell me the day, alone I have to try and put other things in place which of course I can only rely on myself to remember to do.81PIIV9RCoL._SL1500_

1.  I have now bought a white board with days of the week on which is stuck on my wall near the chair that I sit in (similar to this)  – I can write down my week, cross off the days (if I remember) and see at a glance whether I have any appointments and see if it helps me know what day it is.

2.  One aid I could get is a clock with the day and date on – they are expensive but which is something I will aim to do

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The good news is that she said I had not progressed any further since my diagnosis so I very was pleased with that.

Maintaining the level I am at is important to me because it means I can get more things in place whilst I still can.

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Author: Gill

I read books and review them. Books are my escape. I have always loved books. I write a blog, I get involved where and when I can in things I feel that are important. I also have Alzheimer's Disease but it does not define who I am. I am in the early stages so you may not notice. So, I will tell you how it is.

10 thoughts on “Dementia: My alzheimer’s progress – no progression!”

  1. Gill, I know exactly how you feel with the date. When I am prompted for the date like writing a check, I’ll ask someone what the date is. I often get a response like “it’s the fourth”. That doesn’t help me. What month is it? What is the year? I am thrilled about the results of your tests, especially when you have been under so much stress! Keep writing!

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  2. Pleased to hear about the results of your tests. Do they take into account if someone is not good with numbers? There’s no way I can count back from 100 in sevens – unless I use my fingers.

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  3. Yes, I agree that probably all of us say, “that happens to me too.” Because it does, yet I keep thinking you must have a different type of feeling about that void when you can’t remember something. Or am I kidding myself and I’m also starting on the horrible path? I worry about that because of the statistics and the stress of being a caregiver. I use the calendar on my computer like a best friend — would really be lost without it. Sometimes I’ve blamed it on retirement because when I worked I had a built in clock/calendar just by the weekdays and weekends (which make no difference now.) So glad the progress isn’t. So glad to hear from you. Nancy

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  4. Each day I start the day by asking my husband what day of the week it is and what is the date? It helps me feel a little less disoriented. I also live and die with my calendar. if it’s not on there, it’s not going to happen!

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    1. I am trying really hard to keep using the calendar and all the other things to help me remember. Its easier to remember what day it is when you have an appointment on that day but then it all goes downhill afterwards!

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  5. Great news that you haven’t progressed any further.
    It’s that ‘remembering’ to cross the date off or look at the calendar (in the first place) which must be hard.
    But while you remember to look each day, you can relax.
    And similarly, while you can keep a daily reminder list with a list of things to do and actually look at it, you can also relax.
    Think positive (while you can).
    Hope you have a good week.

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  6. Hurray that there’s been no progression. Those big calendars that you can write on and the clocks with day, date, time are very good to have. Sigh…I remember giving some of those tests you took but to be honest with you. Counting by 7’s even forward is difficult for me but I’m great at 5’s 🙂 Math was and never will be my thing.

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