Hubby was sorting out some memory sticks from a cupboard and handed me a pile of mine that I had forgotten I had and on one is some of my photographs that are missing! I had forgotten I had put some on there so am pleased to have them back. Yay!
Yesterday we had an online meeting for the Dementia Mentors project that I have become involved with www.dementiamentors.com . This is a site for people WITH Alzheimer’s and Dementia throughout the world, MADE BY people with dementia and Alzheimers. It is to support people who have been newly diagnosed and show them that we LIVE WELL with these things not suffer from them.
Only people with Dementia and Alzheimer’s knows what it is like to have them so rather than reading a leaflet this site is to reassure the recently diagnosed that we understand and can show that life is just as fulfilling and positive by offering an online meeting with a mentor who really understands.
I did not realise how little there is out in the wide world for younger people with Alzheimer’s and Dementia who still have high cognitive functioning. Most of the groups and support available is for older and more advanced stages.
The last time I saw my Consultant she introduced me to Aileen from the Alzheimer’s Association and we chatted about what support there was available for me which was appropriate, she said she would look into it and get in touch with me. Today I had a phone call from her to say that she was looking at a pilot scheme for Younger Early onset Dementia/Alzheimer’s people to start a Memory Cafe in the Derbyshire Area. Brilliant! I am looking forward to this first meeting to see what it should be like, what do we want out of it. I do love to get involved in something worthwhile, it gets me fired up with a purpose.
Today is always another day..
It struck after getting a new computer. The question was how to transfer photos and documents from my Asus to my new Macbook Pro – yes a luxury that I already love. I have most of my photos backed up on a Toshiba external drive and needed to format my drive to be FAT or whatever, so copied the files back to my Asus…………….but instead of adding them it didn’t. Did it overwrite the files? No and I have no idea quite what it has done. My original files are there, well most of them but my ‘story’ I have been writing (70,000 words so far) has gone, the only copy left is from October 2013 😦
I am mortified, both my writing and my photos have gone, so much for having kept them safe on an external drive. All my wedding photos but thank goodness Mr Hsg has got as many as I had. Apart from the pieces I have posted on here, with my memory problem I will never be able to rewrite what I have lost. I thought it was safe keeping it on an external drive but no, I should have printed them all out, you can never beat paper copies.
There is no point in being upset, I have to try and continue using what is left. I have a file with photos that I had include in my writing so can guess what I was writing about and start again. I will never remember anything I have written without them.
Onwards and upwards.
I was summoned to the Treatment Centre to check my eyes. I had the usual visual field, GDX and another test and all the results were good. Fabulous! That’s what I always want to hear. The consultant asked me questions and finally said, I have never heard of the symptoms you are describing, he mused. Do I look smaller one side to you; no I answered it is usually when I am reading that it occurs, although my perceptions of buildings and road are weird. I find it fascinating I laughed, and he agreed. This sounds like a problem with perception and your brain he concluded saying he would write to my Doctor for a referral back to my head consultant, although it would probably be just for notification only. What an interesting Alzheimer’s Journey this is turning out to be!