Media, I am not a dementia soundbite!

I have had two radio interviews, one with BBC Radio Tyne Tees, which I have written about, and another with BBC Radio Newcastle.  When I talk I sound fine.  People say to me that I don’t sound like there is anything wrong with me.  Exactly, and I am the first person to point that out with, I might sound okay, I might look okay, but I am not okay.  So, when I talked to these presenters I say this to them.   They ask me questions and I answer,  I tell them how it is for me, because everyone who lives with dementia experiences it differently.  I do however, talk about general things that people with dementia can experience when living with the disease.  But, they are asking me about myself so I answer.

I felt the interviews went reasonably well, apart from Tyne Tees chap who kept using the word ‘suffering’ grrrr!   He actually had no idea he was continually saying it, which means he was just doing a job and not at all interested.

When I listen to them back I am horrified by how they have been edited.  I sound like someone with more advanced dementia!!!!   The answers have been cut so that what is left are the words I am saying inbetween the answers I have given…just words, going nowhere in particular.

Why do reporters do this, why should I be shown as a media stereotypical dementia soundbite?   I AM NOT A SOUNDBITE JUST SO YOU CAN TICK A BOX TO SAY YOU HAVE INTERVIEWED SOMEONE WITH DEMENTIA.

Why can’t the media accept that more people are being diagnosed with dementia earlier at a younger age, and can still hold a sensible conversation.  

I need to have a cup of tea to calm down now 🙂