Received a copy of my diagnosis from Professor L. I find I always need to know the exact details, everything there is to know. I think that Prof L does not see the benefit of discussing my diagnosis with me. Maybe he thinks it would not help me/I wouldn’t understand/I will forget anyway. I always need to know details, no matter what it is. Maybe that is part of my Alzheimer’s the obsessiveness of needing details. On the other hand I have always felt that as the patient, I am the person who should be talked to first. I should be told, I should be talked to as if I will remember, because actually I think I will.
I studied psychology and I do understand the workings of memory, I enjoyed the neuroscience part of my degree more than the ’emotional’ side at University. The letter explains that I have deficits in the medial temporal lobe, more so on the right side. There is no dementia (yet). Sooo… how does this make me feel…numb really.
I read this article on an American Alzheimer’s site that gave the 7 stages that I will go through. It was honest, and I welcomed it. UK site’s seem to want to hide all these nasty things from us but I want to know. I am at the pre, pre stage, I have difficulties with my memory, I am finding that my sense of humour is somewhat lacking these days, I find it difficult sometimes to understand what is going on when I am watching a program on tv. As a touch typist who has typed for years, I am now finding that I am ‘automatically’ typing as if I was dyslexic, in other words, transposing letters within a word. Or I am typing a word that is different to what I am typing which I am having to correct constantly. e.g. Or I am typing a work that it different to what \i am typeing whcih I am having to correct contsantly. (typed without corrections). Ok so this may not be that much of a problem, but I know it and it shows what is happening to me, which I would rather not see.
So what have we done these past two days……yesterday Mr Hs slept all day..his man flu is at the coughing stage which is wearing him out. Me, I made blueberry muffins, cooked dinner, read and did not a lot else. Today, Mr Hs went out bought 3 bags of coal, and pressure hosed the pontoon along the side of the boat. The green algae that grows in the wet weather makes the pontoons very slippery and lethal! Then he filled the water tank whilst I did three loads of washing, and drying, cooked dinner, cleaned the carpets, and cleaned the bathroom. Thus the day was filled with normal boating life chores. Yes, it is a lovely peaceful way of life, but you have to constantly monitor your water consumption, monitor whether the toilet cassette needs emptying, take your rubbish by car to the skip, empty the Tipee Ash Can in the ditch or fill in a hole in the road around the marina. I still love it though.