Hubby was sorting out some memory sticks from a cupboard and handed me a pile of mine that I had forgotten I had and on one is some of my photographs that are missing! I had forgotten I had put some on there so am pleased to have them back. Yay!
Yesterday we had an online meeting for the Dementia Mentors project that I have become involved with www.dementiamentors.com . This is a site for people WITH Alzheimer’s and Dementia throughout the world, MADE BY people with dementia and Alzheimers. It is to support people who have been newly diagnosed and show them that we LIVE WELL with these things not suffer from them.
Only people with Dementia and Alzheimer’s knows what it is like to have them so rather than reading a leaflet this site is to reassure the recently diagnosed that we understand and can show that life is just as fulfilling and positive by offering an online meeting with a mentor who really understands.
I did not realise how little there is out in the wide world for younger people with Alzheimer’s and Dementia who still have high cognitive functioning. Most of the groups and support available is for older and more advanced stages.
The last time I saw my Consultant she introduced me to Aileen from the Alzheimer’s Association and we chatted about what support there was available for me which was appropriate, she said she would look into it and get in touch with me. Today I had a phone call from her to say that she was looking at a pilot scheme for Younger Early onset Dementia/Alzheimer’s people to start a Memory Cafe in the Derbyshire Area. Brilliant! I am looking forward to this first meeting to see what it should be like, what do we want out of it. I do love to get involved in something worthwhile, it gets me fired up with a purpose.
Today is always another day..